The Mission
Restoring trust between patients and providers through a radical reframing of how data informs healthcare decision-making.
The Legacy
In 1969, Sarah Lawrence founded the world's first genetic counseling program. It remains the largest. Long before "precision medicine" had a name, genetic counselors established the principle this Institute is built on: health data becomes insight only when a patient and a provider sit down and talk about it. The same result, sitting alone in a chart, changes nothing. Surfaced in dialogue, at the right moment, it changes everything.
The Idea
But dialogue depends on disclosure - a patient willing to share their symptoms, their family history, their lived experience, alongside the flood of new data from genomics, proteomics, the microbiome, wearables, and more. And disclosure depends on trust. Today's system is built to erode exactly that. Inert data can't repair it. People can.
The Vision
As medicine becomes more data-centric and consumer-driven, we are working toward a future where everyone has agency over their health and well-being.
